Thursday, January 26, 2023

The Results are In

Entry 79
January 23 

Sharing our letter to family and friends 



Greetings,

For some of you this will be the first time hearing from me directly and I would like to say that we are appreciative of your interest and care as we've moved through the various stages of my Dad's diagnosis. If you are receiving this email, it's important for you to know this is a message of information and appreciation. 

This past week our family met with Oncologist, Dr. Joel Gingrich, our beloved friend and retired doctor Dr. Graham Fuchs and, dear family friend and Radiologist, Dr. Jeff Mottola all whom have played key roles in navigating our care plan (with the two latter being exceptional beyond measure). 

We have moved into a new phase in our journey, one which has presented us with some difficult choices. As you were probably already aware, the cancer that began in the prostate has traveled, most notably, to the surface area of the bones. Up until this week, we were under the impression this was the extent of that spread. This week's revelation was that the cancer appears to have entered the liver in a manner consistent with aggressive disease. At this point, we have discussed our options as a family, cautiously weighing both the positives and negatives of further treatment as well as the option to pursue palliative care at home. Our family has had no shortage of difficult conversations over the last year and so our mantra has and always will be, we do this together. This has given us lots of strength to draw on and has led us to find comfort and peace in the decision to move forward with palliative care at home.

It is important for you to know that my Dad LOVES to hear from you. This is a time where reaching out is valued and appreciated. Rest has been prioritized so the phone may not get picked up for days at a time but, know that any communication, email and text included, provide a great deal of comfort and strength as we go forward. My Mom or I may be the ones to respond and that will likely vary with how my Dad is feeling on any given day. We talk often about how much my Dad appreciates your friendship and concern and I know he'll look forward to having more personal communication In the coming days. You have made a difference in our lives.

I know this may come as a shock to some, we were certainly in that boat and likely still are. In sending this email I hope to mitigate some of the effort required in having my Dad find the right words. There are still many things to be grateful for and laughs to be had (you may wish to ask him about our family phone call to the bank, where he was treated like a Somali pirate), so don't let him off the hook. He'd have it no other way.

With great regard and lots of love,

Tom


Harry can be contacted by email : harry.stimson at gmail.com

Monday, January 23, 2023

Chemo Completed but....



Entry 78
January 3, 2023

It really began to unravel on Christmas Day.  I woke up feeling quite sick. I tried to get out of bed to stand up but my left hip/leg would not support my weight and I fell. Fortunately I was facing the bed so no injury. Within 24 hours, on Boxing Day, I was unable to walk unassisted even to get to the bathroom. A wheelchair was pretty much the only option outside of the house.


What to do? It was Christmas and everything closed including Cancer Care.

On Thursday the 29th of December,  we finally got through to CancerCare - Urgent Care. They took me right away. I went through an all-day battery of tests including an X-ray. A lesion on the femur was deemed worrisome and required a CT Scan on Friday, the 30th, to determine the direction for a round of radiation on Monday, January 2. Yikes! 


In quick succession the following happened on Tuesday, January 3:

An ‘extensive’ CT Scan followed by ‘full’ Bone Scan, (their quotation marks not mine)followed by Zolmeta (bone strengthening) IV and finally blood test. So you know when they are talking that kind of hammering in a day and a half you know they are looking for something significant. The interview with the HSC Radiologist last Friday suggested as much.  





We won’t know results probably until mid next week after all scans and tests analyzed. 


Also, we will not know if I will begin to feel better.  The radiation is specific to the femur and pelvis, primarily to reduce pain. 

 

That’s where it currently sits. The radiation has helped my ability to shuffle around the house but anything other than that would require a wheelchair.


We have just passed the 12th year anniversary since my prostatectomy.